2023 Annual MarkVCID Conference
The Consortium met in person for the first time since the COVID-19 pandemic to discuss the breakthroughs and challenges of enrolling diverse all-comers populations with cognitive complaints and/or early symptomatic stages of cognitive impairment and dementia diagnoses potentially associated with cerebrovascular small vessel disease (SVD).
With the goal of validating the candidate biomarkers over the next three years in mind, external advisors, NINDS, and Consortium sites brainstormed ways to improve participant enrollment and retention efforts and increase MarkVCID’s visibility in the broader community.
Consortium members spoke about their experiences engaging with diverse study participants, their families, caretakers, and clinical care teams. They exchanged ideas on various outreach initiatives that would ultimately improve participant experience and access to information about SVD-related VCID.
The conference ended with an exciting walking tour of Old Town Albuquerque. The tour was full of history and tales from the Wild West!
Presentations
Introductions & Consortium updates
Overview & Goals
Steve Greenberg, MD, PhD
Imaging Updates
Karl Helmer, PhD
Operational Data
Lisa Wruck, PhD & Lida Mazina
Fluid Biomarkers for Neurodegenerative Disease
Jason Hinman, MD, PhD
MarkVCID Statistical Methods
Lisa Wruck, PhD
Guest Speakers
Incorporation of Biomarkers from an Industry Perspective
Susan Catalano, PhD
Where VCID Research is Headed from an NINDS Perspective
Rod Corriveau, PhD
Consortium Panels
Recruitment & Axes of Diversity
Moderators: Gwen Windham, MD (UMMC)
& Kristen Schwab (MGH)
Rush: Konstantinos Arfanakis, PhD
UTH: Hector Trevino
USC: Marlena Casey
WUSTL/UTSW: Andria Ford, MD
JHU/UMB: Kaisha Hazel
Retention
Moderators: Jill Prestopnik (UNM)
& Kristin Schwab (MGH)
Mayo/UMMC: Pashanthi Vemuri, PhD
UNM: Elizabeth Ott
UKY: Katherine Snyder
UC: Charles Windon, MD
Vision for Broader Outreach
Moderator: Jin-Moo Lee, MD, PhD (WUSTL)
UCLA: Jason Hinman, MD, PhD
UCD: Pauline Maillard, PhD
UTHSCSA: Claudia Satizabal, PhD
UNM: Arvind Caprihan, PhD
USC: John Ringman, MD
Coordinator Workshops
Cognitive Battery Administration & Scoring
Victoria Williams, PhD
Data Completeness
Vilma Okey-Ewurum
Cerebrovascular Reactivity (CVR)
Hanzhang Lu, PhD
Panel 1: Recruitment & Axes of Diversity
Moderators: Kristin Schwab, MGH; Gwen Windham, UMMC
Panelists: Marlena Casey, USC; Konstantinos Arfanakis, Rush; Andria Ford, WUSTL; Kaisha Hazel, JHU; Hector Trevino, UTHSCSA
Panel 2: Retention
Moderators: Kristin Schwab, MGH; Jill Prestopnik, UNM
Panelists: Elizabeth Ott, UNM; Prashanthi Vemuri, Mayo MN; Charles Window, UCSF; Katherine Snyder, UKy
Click Here to see the 2019 Annual MarkVCID Conference Page